more photos

Jonathan's picture of Dad taking a picture of a swan! Ferry Meadows Peterborough Better late than never Photos from Jonathan's 20th birthday

Jonathan catches Rosie wearing Sarah's jacket!

Jonathan riding Digby with support from his College teachers.

And learning about Stable management he gets stuck in to mucking out!

Transformed!

Eve's energy levels have been dropping further and further in recent weeks. Often struggling to remain awake for more than an hour or so at school and reduced to this for the days she isnt at school.

10 nights ago Eve started using a ventilator overnight. She loves it and gets quite excited when she sees the hose and mask.

We had noticed that she was more alert...but not wanting to claim succes too early and end up dissapointed we were rather hesitant to say it seemed to be making a big difference. Then yesterday we went out an dhorus drive in the car, a lovely wander around Tesco...looking at lots of clothes and toys and other exciting things...Eve chose a hat that she refused to take off all day...she remained awake all the way home, during a meal in a cafe and then was watching telly during the evening...until Daddy was playing with his camera and she got quite cross he wasnt pointing it at her! "ME DADDY"!

Still awake and full of smiles at 8.55pm!

The other photos!