Jonathan and Rosie Awards Night

Monday evening we were invited to a posh Hotel near Jonathan and Rosie's School to celebnrate the acheivment of the children in Key Stage 4 and 5. Some of these chidren will be moving on to Adult services, college or some even into employment. Others will still remain at school but working towards greater independance of some kind.

That word "independance" takes on a whole new meaning when you have a child with significant needs, what on earth does independance mean to Rosie???

Rosie was giving us serious cause for concern again during the morning as a phone call from school told us she had had a major seizure. This was the first Tonic Clonic seizure they had seen at school and unfortunately they forgot all their training and her medication was not administered, Thankfully Rosie came through it all and by the time she arrived home on the transport she was back to near normalish for her.

Going through the evening schedule and adding in changing into posh clothes for our night out Rosie seemed OK if a little quiet. By 6pm I was ready for sitting down but made the extreme effort to get out the door. At this point in the proceedings I changed my position of Mum who manages most things to useless woman who forgot to turn the lift off in the Bus so that the battery was now flat....eeek knew there would be a downside to not having driven it for over a week!

So with a bit of a grumble and moan we made the decision to drive the smaller Vito and we still managed to arrive there first...I think that is quite an achievment we are rarely first anywhere!

The evening was good, lots of work and stuff to take pride in, Rosie's one to one support was thre and graciously spent a lot of her time watching Rosie or cuddling Eve. The Headmaster and Deputy hed both chose to sit at our table to eat which was nice. Jonathan was very chuffed to sit next to Darren the head. Rosie took great delight in demonstrating her very best table manners to the Deputy...who I am not quite sure enjoyed sharing Rosie's half chewed chips! Rosie had a few partial seizures during the meal...and I am not sure that chips were such a good idea with her swallowing difficulties but she insisted!

The actual awards took place at the end of the meal...Jonathan was very proud of his certificates.

I was realy impressed and pleased to experience the Head getting down to Rosie's level to present hers.

I dont think Rosie took quite so much pride in her achievments though.

It was a good evening, nice to catch up with the staff and children.

Rosie had another seizure when we got home and had a very uinsettled night she was not too special going off to school but apparantly when I phoned to check on her at 11 am, she had settled down and was fine!

Today we are seeing some real progress on the house. The rain stayed off and the plumber is also getting on with the boiler installation.

This was the situation at the weekend.